Cystic Fibrosis Tasmania provides resources and support to people with Cystic Fibrosis, and to their loved ones.
What is Cystic Fibrosis?
Cystic Fibrosis (CF) is one of the most common, autosomal recessive, life-limiting diseases affecting children and adults in Australia. It causes thick, sticky mucus which affects the lungs and digestive system.
In the 1950s babies born with CF often died in infancy. However, babies born today can expect to live well into adulthood as CF becomes a more manageable disease due to advances in research and new treatments.
The gene involved in CF gives instructions for the cells to make a protein that controls the movement of salt in and out of the cells .All of us have two copies of the salt transport gene. Scientists have called this gene the CFTR (Cystic Fibrosis Transmembrane Regulator) gene.
The 65 Roses Story
The term 65 Roses dates back to 1965 when a young boy who had the condition overheard his mother on the phone talking about it. One day he said to his mum, “I know what you are talking about, Mum – you are talking about 65 Roses”. We know it’s a difficult name to say, so we think that “65 Roses for Cystic Fibrosis” is a great way to promote the disease.
65 Roses Day is celebrated in Australia on the last Friday in May. CF Associations around the country hold a range of activities throughout May to raise community awareness and undertake fundraising activities.
Our most significant activity is the 65 for CF Challenge. Be sure to check out the information here about how you can be involved.
People with CF can catch bacteria from each other, leading to worse symptoms and a decline in lung function. To reduce the risk of spreading or getting germs, it is recommended that:
- People who have CF keep at least four metres away from others with CF.
- People with CF, who do not live together, should avoid activities that:
put them in close physical contact with others with CF, including shaking hands, hugging or kissing,
- sharing common objects like pens, toys and computers or
- being together in enclosed or poorly ventilated places like cars.